Calls for urgent renegotiations on price of Cystic Fibrosis drug

A Sligo Leitrim TD is calling for renegotiations on the price of a vital drug for people with cystic fibrosis.

Fine Gael T.D. Tony Mc Loughlin, said he spoke to the new Health Minister Simon Harris last night to outline his disapointment that the Orkambi drug has not been recommended for approval by the National Centre for Pharmacoeconomics.

The decision is based on the high prices being charged by the company who manufacture the drug.

Cystic Fibrosis sufferers told the national conference of the organisation in Sligo recently that the drug has the potential to change and save the lives of many people living with the condition.

At the conference the Taoiseach himself expressed his commitment to CF services and the review being undertaken of this drug which this week has recommended the HSE should not fund it due to cost.

However, today the manufacturer Vertex said it is willing to negotiate on price and talks will be entered into.

Deputy McLoughlin says this must be done without delay: