CF patients hope for government action on Orkambi ahead of Dail protest
Fianna Fail has committed to making a ‘final push’ to ensure that patients of Cystic Fibrosis can access the potentially life-saving drug Orkambi. Fianna Fail TD in Sligo Leitrim Marc MacSharry raised the issue with the Taoiseach in the Dail this week and accused Enda Kenny of being ‘out of…
CF drug campaigners from north west in Dublin for Dail protest
Supporters from the north west of the campaign to have the Cystic Fibrosis drug Orkambi made more widely available in Ireland are gathering in Dublin for a protest outside the Dail this afternoon. The demonstration comes after a report in The Sunday Business Post revealed the HSE is set to…
MacSharry raises Sligo family’s cystic fibrosis drug campaign in the Dail
The campaign by a Sligo town family to have the drug, Orkambi, made more widely available to cystic fibrosis sufferers has been raised in the Dail this afternoon. Terri and Aisling Golden have been among the most vocal critics of the decision by the HSE not to fund the provision…
Calls for urgent renegotiations on price of Cystic Fibrosis drug
A Sligo Leitrim TD is calling for renegotiations on the price of a vital drug for people with cystic fibrosis. Fine Gael T.D. Tony Mc Loughlin, said he spoke to the new Health Minister Simon Harris last night to outline his disapointment that the Orkambi drug has not been recommended…