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Campaigners to secure approval for a new ground breaking drug for people with Cystic Fibrosis in Ireland are hoping to have a positive announcement this week. They are holding their third protest outside the Dail at lunchtime tomorrow in an effort to highlight the need to for the drug Orkambi.…

The HSE will today enter the ‘final stages’ of talks to agree the price of a major new drug for Cystic Fibrosis. Senior management will spend the rest of the week in discussions with Vertex over the cost of the drug Orkambi. It’s been heralded as a ‘wonder drug’ for…

There are calls for the Health Minister to make a statement on the drug Orkambi without delay. Sligo Leitrim Fianna Fail TD Marc MacSharry says he contacted the drug-manufacturing company Vertex on Friday. He says a spokesperson confirmed they have yet to hear back from the department of Health since…

A Sligo Cystic Fibrosis campaigner is urging people to support a protest outside the Dail tomorrow. It’s the second-such protest being organised by CF patients headed by Longford campaigner Jillian McNulty. They are calling for what they claim is a ‘ground-breaking’ drug called Orkambi to be funded by the government…