Cystic Fibrosis campaigners hopeful ahead of third national protest
Campaigners to secure approval for a new ground breaking drug for people with Cystic Fibrosis in Ireland are hoping to have a positive announcement this week. They are holding their third protest outside the Dail at lunchtime tomorrow in an effort to highlight the need to for the drug Orkambi.…
Health minister wants more time to negotiate Orkambi deal as campaigners protest at Dail
More than a thousand Cystic Fibrosis campaigners are gathered outside Leinster House calling for the approval of the Orkambi drug. Protestors are holding a minute’s silence outside Leinster House for the second time in a matter of months. Campaigners will hold purple balloons and purple roses as an expression…
Cystic Fibrosis campaigners organising protest outside Dail Eireann
A Sligo Cystic Fibrosis campaigner is urging people to support a protest outside the Dail tomorrow. It’s the second-such protest being organised by CF patients headed by Longford campaigner Jillian McNulty. They are calling for what they claim is a ‘ground-breaking’ drug called Orkambi to be funded by the government…
CF drug campaigners from north west in Dublin for Dail protest
Supporters from the north west of the campaign to have the Cystic Fibrosis drug Orkambi made more widely available in Ireland are gathering in Dublin for a protest outside the Dail this afternoon. The demonstration comes after a report in The Sunday Business Post revealed the HSE is set to…