Emotional scenes for Sligo CF campaigner outside Dail Eireann
There have been emotional scenes outside the Dail as Cystic Fibrosis campaigners protest about the delay in making the drug Orkambi available. More than 600 people gathered outside the gates of Leinster House for a minutes silence followed by a demonstration involving purple balloons and ribbons. The matter was raised…
Cystic Fibrosis campaigners organising protest outside Dail Eireann
A Sligo Cystic Fibrosis campaigner is urging people to support a protest outside the Dail tomorrow. It’s the second-such protest being organised by CF patients headed by Longford campaigner Jillian McNulty. They are calling for what they claim is a ‘ground-breaking’ drug called Orkambi to be funded by the government…