Cystic fibrosis campaigners will gather outside the Dáil this lunchtime to hold a minute’s silence to honour those who have lost their lives to the disease.
Health Minister Simon Harris announced last night that the HSE has reached a deal with pharmaceutical firm Vertex to provide groundbreaking drugs to about 600 people suffering with CF in Ireland.
The drugs Orkambi and Kalydeco will be available from May 1st.
Minister Simon Harris made the announcement in the Dail yesterday evening followed by a video on facebook to inform people:
Grainne Golden from Cartron in Sligo passed away last year at the age of just 21 as a result of Cystic Fibrosis.
Her sister Aisling and her family have been campaigning strongly on this issue and welcomed the move by the Minister last night.
CF patient Jillian McNulty from Longford has led this campaign and worked closely with families like the Goldens. However she regrets that the announcement comes too late for those who have already died: