Sligo – Leitrim Cycle kicks off, An Taoiseach Enda Kenny taking part
The Sligo – Leitrim 60km Charity Cycle Sportive kicked off at 10am this morning from IT Sligo. The cycle is in aid of North West Hospice Sligo and Cystic Fibrosis Ireland. The cycle began at 10am from IT Sligo this morning, and will take participants on a scenic route from…
Campaigners set to hold minute’s silence after Minister confirms welcome deal on Cystic Fibrosis drug
Cystic fibrosis campaigners will gather outside the Dáil this lunchtime to hold a minute’s silence to honour those who have lost their lives to the disease. Health Minister Simon Harris announced last night that the HSE has reached a deal with pharmaceutical firm Vertex to provide groundbreaking drugs to about…
Emotional scenes for Sligo CF campaigner outside Dail Eireann
There have been emotional scenes outside the Dail as Cystic Fibrosis campaigners protest about the delay in making the drug Orkambi available. More than 600 people gathered outside the gates of Leinster House for a minutes silence followed by a demonstration involving purple balloons and ribbons. The matter was raised…
Health minister wants more time to negotiate Orkambi deal as campaigners protest at Dail
More than a thousand Cystic Fibrosis campaigners are gathered outside Leinster House calling for the approval of the Orkambi drug. Protestors are holding a minute’s silence outside Leinster House for the second time in a matter of months. Campaigners will hold purple balloons and purple roses as an expression…
Cystic Fibrosis campaigners organising protest outside Dail Eireann
A Sligo Cystic Fibrosis campaigner is urging people to support a protest outside the Dail tomorrow. It’s the second-such protest being organised by CF patients headed by Longford campaigner Jillian McNulty. They are calling for what they claim is a ‘ground-breaking’ drug called Orkambi to be funded by the government…
CF drug campaigners from north west in Dublin for Dail protest
Supporters from the north west of the campaign to have the Cystic Fibrosis drug Orkambi made more widely available in Ireland are gathering in Dublin for a protest outside the Dail this afternoon. The demonstration comes after a report in The Sunday Business Post revealed the HSE is set to…
MacSharry raises Sligo family’s cystic fibrosis drug campaign in the Dail
The campaign by a Sligo town family to have the drug, Orkambi, made more widely available to cystic fibrosis sufferers has been raised in the Dail this afternoon. Terri and Aisling Golden have been among the most vocal critics of the decision by the HSE not to fund the provision…