Fathers of children with spinal muscular atrophy appeal for access to life-changing drug



A campaign is underway to provide a life-changing drug to those children suffering with the condition of spinal muscular atrophy, or SMA, which is a disease causing muscle wasting and wasting. Paul O’Malley and Paul Mearns both have young children with the condition while Frank Browne’s baby daughter died from it, 14 years ago

 



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