The family of a Leitrim girl who suffers from a rare disease is calling on the Minister for Health to prevent the HSE from withdrawing the funding for a life changing drug.
Grace McIntyre suffers from Morquio, which affects the skeletal system.
She is nine years old but her body is still at the development stage of a three year old.
Sligo/Leitrim TD Martin Kenny appealed to the Taoiseach in the Dail to find the money for the drug for the 9-year-old….
