Letter from CF victim’s sister read out at Sligo council meeting

The sister of the late Grainne Golden has called on Sligo County Council to support her calls for the cystic fibrosis drug Orkambi to be made available to all sufferers.

Grainne Golden from Cartron passed away last year at the age of just 21 from cystic fibrosis.

Her sister Aisling Golden submitted a letter to the Council which was read out at their monthly meeting yesterday by AAA-PBP Councillor Gino O’Boyle.

He got unanimous support for his motion for the council to call on the health minister Simon Harris to make the drug available.

In the letter, Aisling Golden wrote that they were not just fighting for Orkambi but for people’s lives.

Cllr O Boyle, who knew the late Grainne Golden, told Ocean FM that he felt it important to highlight the issue especially following the well attended protest on the issue in Dublin last week: